Topic “My journey into the world of hearing” is presented by Tobias Fischer from Austria. He will also answer your questions. Tobias received his first CI in 1988 and was the first child in Germany to receive a cochlear implant. He studied at the University of Applied Sciences Gießen Friedberg in Germany and has been working vor 14 years for an aerospace company as a systems engineer. He supports ÖCIG (Austrian Cochlear Implant Society) as a volounteer.
Questions:
00:00 Introduction to the Forum Discussion 6:30 “My journey into the world of hearing”. What improvement have you experienced from the second CI (2007), given the 19-year period after the first CI (1988, after meningitis) and also a significant age difference? 16:18 Audience – is it the same group of people or do you have many new members? How do they find out about the organization? How much time do you spend working for ÖCIG? 21:50 Do you have many parents with children with CI in ÖCIG, do you organize special events for children? 26:38 Young adult CI users seem to take their implants for granted, just like their socks. Can they even begin to imagine how difficult their lives would have been without CI? What do you think it will take to encourage other young CI users to get into advocacy, and thereby help the millions of other children who currently suffer without implants? 36:30 From which country are you coming from? 51:30 Dr. Bertram, out of 1400 children, how many of them had unilateral CI, bi-lateral CIs, bi-modal fitting with HAs, and what was the difference of patient outcomes between these groups? 1:04:27 How did you feel when you started hearing with your 2nd ear? What is your social circle – people with CI or people with normal hearing? Is your first implant is still working well? Are any of the electrodes switched off? 1:10:21 you speak excellent English; how did you study it? 1:11:33 Was there stress for your brain when there are so many new sounds at once? Do you advise to implant two ears at the same time based on your experience? I know the opinions of doctors. But what does this mean for you as an implant wearer? 1:19:30 Question to Dr. Bertram. You have very extensive practice with children with cochlear implants. Now that a child receives a cochlear implant and all the conditions for its success are met (age, quality therapy, family involvement), we have high expectations for the technology, that the child should develop as his hearing peers. What were the expectations for technology at the beginning of your practice? 1:30:00 I think a big problem is that young people who got their first implant as babies have no memory of the learning process. They are shocked at how much work it takes to hear when they get a second implant decades later – so reject them. This is why it’s best to bilaterally implant babies simultaneously. For adults, their life situation is different. For most adults, sequential bilateral implantation is probably the better option.
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